Advocating For
Consumers
CARIN is not a patient advocacy organization but an organization that exists to advocate on behalf of the patients.
The CARIN Alliance
We promote the ability for consumers and their authorized caregivers to gain digital access to their health information via non-proprietary application programming interfaces or APIs.
We envision a future where any consumer can choose any application to retrieve both their complete health record and their complete coverage information from any provider or plan in the country.
CARIN Board & Participants
CARIN members include leading organizations in three broad categories:
Patients, Caregivers, Care Team, Consumer Advocates, Purchasers, and Others
Providers, Health Plans and Clearinghouses, and their Business Associates
Entities
Consumer-facing Applications, Devices, Services, Platforms, Researchers, Infrastructure Firms, Standards Organizations, Identity Providers, Certifiers and Data Exchange Networks
Strategic Priorities
Our vision is to rapidly advance the ability for consumers and their authorized caregivers to easily get, use, and share their digital health information when, where, and how they want to achieve their goals.
We have developed a trust framework and code of conduct for consumer-directed health information exchange.
We develop Open Technical Standards for organizations to share more data with consumers with Less Friction.
We are Working with Providers and Payers across the country on Technical Pilots that will implement our work for Benefit of all Consumers.
We provide public comments and make recommendations to policymakers including: Congress, the Department of Health and Human Services (HHS), Office of the National Coordinator for Health IT (ONC), Office of Civil Rights (OCR), Federal Trade Commission (FTC), and others to help advance consumer-directed exchange.
Guiding Principles
CARIN’s work is guided by the following guiding principles:
Empower consumers and providers to partner in health care decisions at every level, wherever the consumer seeks care
Make consumer health information easy to get, use, and share by consumers and their care teams
Make consumer health information digital, valuable, and intuitively understood by the end user
Use an ecosystem of innovative platforms while remaining platform agnostic
Support industry best practices with implementing consumer-directed exchange
Organizations Directly Involved in Care, Administration, or Consumer Advocacy — including Providers, Health Systems, Payers, and Consumer Groups
Board Members Govern the Alliance and have Rights to Appoint Steering Committee Members and set the Mission, Strategy, Policy, and Activities.
Any health care related organization interested in participating in the Alliance and its activities
Affiliates can include health IT organizations, app makers, technology providers, and others
Affiliate members participate in workgroups and other CARIN activities, but do not vote on the board.
Government Observers and others invited to join without a Formal Membership
Other alliances – such as standards setting organizations, technology consortia, data exchange networks or other groups engaged in activities which are aligned with the CARIN Alliance.
CARIN Alliance is a stakeholder collective that provides open-source information to drive healthcare modernization on behalf of Health Care Professionals, Payers and Patients
We work with organizations to implement digital tools that will prepare your systems process for the future landscape
Please let us know how the CARIN Alliance can help your organization facilitate your needs. We are happy to schedule a call